Student
mom working to prevent spina bifida
By
Laura Weems
Old Gold and Black Reporter
Sophomore Angela Mims is studying computer science, but the main focus
in her life is her daughter, Delia.
Delia isnt like other little girls her age. She was born with
spina bifida, a birth defect that affects one out of every 1,000 newborns
in this country. Sometime during the first four weeks of Delias
conception, her spinal column did not fully close.The result is a life
full of painful surgeries, confined to braces and wheelchairs.
Mims and her husband, David, both 28, learned of their daughters
defect after four months of pregnancy.
At the time, both were completely unaware of the defect and what it
meant in terms of their daughters life.
Spina bifida, like many birth defects, affects each child differently.
The hole left in the spine could be the size of a fist or the size of
a football.
Mims started a fax campaign in which they hope to get local businesses
as well as the universitys academic departments, student organizations
and administration to put a small plug for folic acid at the bottom
of their cover sheet. That way any person who receives a fax from one
of these institutions will also get the news.
What the Mimses found out, however, was that their daughters condition
possibly could have been prevented.
By taking a folic acid vitamin supplement, Mims could have reduced her
risk by up to 75 percent.
I was just angry! she recalled feeling when she found out.
Angela, who prides herself on being up-to-date and educated, felt, in
her own words, stupid.
How could I have not known that? she remembers wondering.
It was at that point that the Mimses decided education was the answer.
They believe every woman needs to understand the risk of spina bifida
and how easily it may be prevented.
As soon as Delia was born, they began working with the March of Dimes
to get the word out about folic acid.
Weve got to tell people, Angela said while rocking
her daughter on her lap. We can save babies ... and thats
huge.
For the past two years, Delia has accompanied her parents to fundraisers,
schools, organizations and offices to speak to people about spina bifida
and folic acid.
They talk to anyone who will listen, the people behind the grocery counter
and students.
Even if we talk to just one person who listens, thats one
more baby thats born healthy, Mim said.
Few women understand the risk of having a baby born with spina bifida.
It is the most common neural tube defect and one of the most devastating.
The majority of cases, 90 to 95 percent, are born to women with no family
history of genetic birth defects.
In fact, they dont know what causes it at all. Environmental and
genetic studies have come up with no conclusive evidence.
Studies have shown, however, that women taking folic acid supplements
reduce their risk greatly. The amount of recommended folic acid, 400
micrograms, is the amount found in most multi-vitamins.
A daily vitamin routine is recommended for all women of childbearing
age.
The defect occurs within the first four weeks of pregnancy.
Women, however, dont usually know they are pregnant until around
that time, if not later. Once a woman knows she is pregnant, its
already too late.
A years supply of multi-vitamins cost $84. The Mimses spent over $30,000
on Delias medical bills within her first year of life.
Delias condition may be debilitating but during the interview,
she wheeled her chair adeptly around the room, glancing from time to
time at the adults engrossed by a conversation she has undoubtedly listened
to a million times.
Things we were told she would never be able to do ... shes
doing, Mims said.
For more information on the Fax Campaign or about folic acid and spina
bifida in general, contact David or Angela Mims at (336) 699-2817 or
e-mail them at mimsag0@wfu.edu.